2012-15 Challenge: Citizens, Parents and Children

The HIFA 2012 Challenge addresses the information and learning needs of Citizens, Parents and Children. (We use the term citizens here inclusively to refer to all people and communities. We are all global citizens with equal rights. And we emphasise children, because children are all too often responsible for the health care of their own parents and siblings.) Our goal: By 2015, Citizens, Parents and Children will have access to the information and knowledge they need to prevent illness and injury, to recognise serious illness, to provide basic care, to seek timely help for medical and surgical care, and to save lives. From 2012-2015 we are convening more than 8000 professionals from 2000 organisations in 167 countries, to focus on these issues on the HIFA2015, CHILD2015, HIFA2015-Portuguese, HIFA-EVIPNet-French and HIFA-Zambia email forums. The 2012 Challenge is an extension of the 2011 Challenge, in recognition of the vital importance of addressing the needs of all citizens, mothers and families.

The HIFA 2012-15 Challenge Working Group is also responsible for coordinating efforts towards the First HIFA SMART Goal:

“By 2015, at least one telecoms provider, in at least one country, will endorse the vision of Healthcare Information For All, and will provide free access to essential healthcare knowledge in the local language, pre loaded on all new mobile phones they may sell and freely downloadable to all those who already have a mobile phone.”

Parents, children and other family caregivers

The health knowledge of parents and family caregivers can often mean the difference between life and death, especially for children. For example:

  • In Africa, up to 80% of child deaths occur at home. [1]
  • A study in India found that four in ten mothers believed they should withhold fluids if their child develops diarrhoea – potentially and tragically contributing to the death of their own child. Almost 1000 children die every day in India alone. Most of their lives would have been saved if their mothers and carers had known to give more fluids with the correct amount of added sugar (6 level teaspoons in 1 litre water) and salt (half teaspoon in 1 litre). [2,3]
  • 8 in 10 caregivers in developing countries do not know the two key symptoms of childhood pneumonia – fast and difficult breathing – which indicate the need for urgent treatment (only 20% of children with pneumonia receive antibiotics despite wide availability, and 2 million die each year). [4]

Further information will be available here shortly. To participate, join HIFA2015 today!.

[1] Oluwole D, Mason E, Costello A. Management of childhood illness in Africa. BMJ 2000;320:594-5

[2] Wadhwani N. An integrated approach to reduce childhood mortality and morbidity due to diarrhoea and dehydration.

[3] UNICEF, WHO, UNESCO, UNFPA, UNDP, UNAIDS, WFP and the World Bank. Facts for Life, 4th edition, 2010.

[4] Wardlaw T et al. Pneumonia: the leading killer of children. Lancet 2006;368:1048-50

HIFA 2012 Challenge Team

Neil Pakenham-Walsh (HIFA Coordinator) is currently the acting coordinator of the HIFA 2012 Challenge, as from July 2013.

Chikezie Emele is a Doctoral Researcher at Robert Gordon University, United Kingdom. Professional interests: Accessibility of Healthcare Information, Usability of Healthcare Information, Information Sharing, Knowledge transfer. Email address: c.d.emele AT rgu.ac.uk

Luther-King Fasehun works as Technical & Policy Lead at The Wellbeing Foundation Africa, an NGO working through advocacy, stakeholder engagement, and health care facilitation, in the areas of maternal, newborn and child health (MNCH); ending domestic violence (EDV); social empowerment and life-skills rendering to women and girls; education; and peace-building. Luthjer-King graduated as a physician in Nigeria in 2008, and has worked in all spheres of the healthcare sector in Nigeria: public- & private-owned hospitals; as well as in primary-, secondary- and tertiary-level facilities. He has a Master’s degree in International Healthcare Management, Economics & Policy; and has briefly interned as a Research Assistant at the World Health Organization in Geneva. His interests are in primary healthcare delivery of MNCH options; family planning and contraceptive options for all ages of women, in all socio-economic classes; health systems development and strengthening; and health information communication, including social media usage. He is based in Abuja, Nigeria. luther.fasehun AT wbfafrica.org

Christine Hagar is an Assistant Professor at the School of Library & Information Science, San Jose State University, USA. She holds a Ph.D. in Library and Information Science from the University of Illinois at Urbana-Champaign, USA. Chris’s primary teaching and research interests are in the areas of crisis informatics. Her research focuses on information needs and information seeking in crises; disaster health information, and roles for information professionals in crisis preparedness and response. She edited Crisis Information Management: Communication and Technologies published in 2012 by Chandos Publishing. Chris carried out a study of the multiple information needs of farmers during the 2001 UK foot-and-mouth crisis. She has worked as an academic librarian in the USA and UK in a variety of positions. Her professional experience also includes serving as Head of Library Development for INASP an international non-government development organization; lecturer positions at the International Centre for Information Management Systems and Services, University of Nicholas Copernicus, Torun, Poland, and at the Department of Information Studies, Northumbria University, UK. Chris has worked as a consultant for the British Council and the UK Department for International Development (DfID). chagar AT dom.edu

Clare Hanbury qualified as a teacher in the UK and then worked in schools in Kenya and Hong Kong. After an MA in Education in Developing Countries and for many years, Clare worked for The Child-to-Child Trust based at the University of London’s Institute of Education where, alongside Hugh Hawes and Professor David Morley she worked to help embed the Child-to-Child ideas of childrens participation in health – into government and non-government child health and education programmes in numerous countries. Clare has worked with these ideas alongside vulnerable groups of children such as refugees and street children. Since her MSc in International Maternal and Child Health, Clare has worked freelance and focuses on helping government and non-government programmes to design and deliver child-centered health and education programmes where children are active participants. Clare has worked in many countries in East and Southern Africa and in Pakistan, Cambodia and the Yemen. Her current passion is for distilling health information for teachers, health workers and others – into simple practical health messages actionable by children.

Heather Kartzinel is a graduate student at San Jose State University School of Information Science, USA. Professional interests: improving health literacy. Email address: hjkartzinel AT cox.net

Lesley-Anne Long is Global Director of mPowering Frontline Health Workers (mPowering) (www.mpoweringhealth.org ). She is based in Washington DC, working in sub-Saharan Africa and Asia. mPowering is a public private partnership which aims to contribute to the elimination of preventable child and maternal deaths by accelerating the use of mobile technology (mHealth) to improve the skills and performance of frontline health workers. Lesley-Anne has significant leadership, advocacy and entrepreneurial experience in the fields of global health, international development, higher education and law. A former Barrister, then Dean of the Faculty of Health & Social Care and Deputy Director of International Development at the UK Open University, Lesley-Anne works closely with governments, international policy makers and others to deliver high impact, large scale programs for sustainable change. Lesley-Anne.Long AT mpoweringhealth.org

Tatjana Martinoska is a Medical Doctor, PhD candidate at IEDC Bled School of Management and owner of consultancy company representing the school in MENA region. She has extensive experience in UNICEF BFHI implementation and UNHCR medical evacuation and emergency response programs. Currently is working in Qatar on CSR projects involved to assist companies implementing UN Global Compact sustainable development seeking to empower networks by setting standards and equipping them to facilitate transformative actions and solutions that impact the Post-2015 Development Agenda, and support widespread advances in corporate sustainability performance. Devoted to fostering development of actions to reach MDG globally, support Philanthropy and Health Care worldwide through established partnerships facilitating consultancies, expertise and skills transfer services. tmartinoska AT bbergvss.co.uk

Mbah P Okwen is a doctor working for the Catholic University of Cameroon. Professional interests: Rational use of medicines in malaria treatment. Evidence based medicines. Evidence informed policy making. Okwenpatrick AT yahoo.fr

Oluwatosin (Tosin) Ogunmoyero is a medical epidemiologist at the Center for Disease Control and Prevention, USA. She is a Nigerian trained medical doctor with a masters in global health science. She is the immediate past coordinator of the 2012 Challenge Group. Her email address is oreogunmoyero AT yahoo.co.uk

Ekezie Ralueke Oluchukwu is a Nurse /Care Coordinator at Precious Health Care Ltd, Nigeria. Professional interests: Administration, Speech, Implementation, Primary Health Care,Home Care, Research. ekezier@yahoo.com, Founder/CEO: Blue Torch Home Care Ltd. www.bluetorchhomecare.org He is a HIFA2015 Country Representative for Nigeria. ralueke AT bluetorchhomecare.org

Vasumathi Sriganesh is assisting the team with advice on searching and identification of full-text papers. Vasumathi Sriganesh has been a medical librarian from 1992 to 1997. She then ran a consulting organization, “QMed Services”, for ten years. In December 2007, she set up a Not-for-profit Trust, which she has named QMed Knowledge Foundation. Through the Foundation, she is working at making a change in the medical schools in India, by conducting training programs for students, librarians and faculty, in searching medical literature effectively. She has conducted over 50 training programs and delivered an equal number of short lectures on the topic. She hopes that the Foundation’s activity will help the current generation of students value the need for an effective search as a component of the practice of Evidence Based Medicine. She has trained at CASP UK, and hopes to set up CASP India sometime with the help of doctors in India. She currently works closely with INFORMER (an association of undergraduate medical students interested in research) and the South Asian Cochrane Network to collaborate for mutual benefit. The Foundation also helps medical libraries harness the power of Internet resources for their user and maintains a Directory of Indian Medical Sites at www.indianmedicalsites.in. vasu AT qmedkf.org.in

Nand Wadhwani is a Founding Trustee of The Mother and Child Health and Education Trust (MCHET) http://motherchildtrust.org/ . Over the past 17 years he has launched several programmes to address the challenge of improving health education in underdeveloped countries. MCHET works primarily in the areas of mother and child nutrition, water, hygiene, sanitation and diarrhoea prevention and management. Nand firmly believes that the most effective and efficient way to advance health education is by employing a mix of established and newer communication technologies to deliver contextually-appropriate messages directly to the people who need it most. He is presently working on the implementation of HealthPhone. This is a free information service preloaded on a mobile phone device, that accommodates both literate and non-literate users. It provides relevant, reliable health and nutrition material in various formats video, audio and text and is is available in more than 60 languages, without a connection or cost. Using rich multimedia, HealthPhone puts life-saving and life-changing facts and methodologies directly in the hands of those who can use it in an accessible format and with 24x7x365 availability, anywhere they go. It is designed to save many lives. He is a HIFA2015 Steering Group member and a member of the mHIFA / HIFA 2012 Challenge Working Group. nand AT motherchildtrust.org

The HIFA2015 coordinator, Neil Pakenham-Walsh, is also a team member, with interests across the whole spectrum of the HIFA 2012-15 Challenge.

We are looking for new team members in the following subject areas:
- Reproductive and maternal health
- Newborn health
- HIV/AIDS
- Malaria
- Tuberculosis
- Communicable diseases (excl HIV-TB-Malaria)
- Non-communicable diseases
- Trauma, surgical care and anaesthesia
- Rehabilitation
- Mental health

“My experience with HIFA has been totally amazing. I have had the opportunity to lead a dynamic multinational and multidisciplinary team of about 30 to stimulate discussions that identify the health information needs of mothers, citizens and families especially in low resource settings. Ranging from breastfeeding options for mothers with HIV, hand hygiene practices and myths about contraceptive use to diarrhoea management and irrational use of antibiotics, the discussions have been eye opening, undiluted and have provided an opportunity to learn. I look forward to continuing to lead this team as we explore options to further encourage participation and possibly extract useful lumps of information for analysis.”
Tosin Ogunmoyero, HIFA 2012 Coordinator